I have had the privilege of sharing zoom calls with three families in the last two weeks. Families who are moving beyond the stage of shock following their loved one’s diagnosis of dementia. Families for whom this is the first conversation with a healthcare professional and dementia specialist after receiving the diagnosis. Families who share, through their tears and their…
I have a friend who is eighty-eight years old. She has advanced dementia, and she has become my good friend. Recently, her doctor changed the dosage for her medication. Because she lacks the cognitive skills that would allow her to remember the details of the medication change (she is unable to remember or bring to mind which pill was changed…
"People are not limited so much by their illness as by their attitude to it. The illness may present physical challenges, but the emotional challenge is often far more important. Our human spirit may stumble as the path ahead appears too daunting, yet with support and encouragement, our resilience can be re-enabled and used to find creative solutions. We are…
Chimney Rock, one of the most famous and recognizable landmarks for pioneer travelers on the Oregon, California, and Mormon trails. A natural geologic formation, it became a symbol of the great western migration. My Grandmother’s headstone reads, “She Loved Life”. I never got the chance to ask her why she wanted that very statement on her headstone. She died with…
My good friends and I (they happen to be 91- and 97-year-old women who do not have dementia) have agreed that we either need to learn to keep our mouths shut, or we need to invest in duct tape. Each of us are Moms of adults kids, you see, and each of us love our kids so dearly that we…
Current dementia care most often has “controlling (unpleasant) dementia behaviors” as its goal. But I would like to suggest that we can do better; that an approach of “managing the environment” is the right goal. Let me see if I can explain. When our approach is that of controlling dementia behaviors, it puts us in a position of responding to…
Prestige: n. “the respect and admiration that someone gets for being successful or important” My guess is that most folks would not say that they have earned the term “prestige”. We might think of this term attached to the notion of notoriety or fame or power. But per Merriam Webster, it is more simple than that. Every person wishes to…
Two and a half weeks ago, Bob and his wife and I went for a walk in their neighborhood. It was a lovely Colorado day with sunny skies and clear air. We walked to their neighbor’s rock, which is Bob’s favorite spot to sit and rest. We all sat and rested and chatted a bit before heading home. Bob stopped…
Colorado State Senator Joann Ginal and a purr-ito named Cheese I wish I had a way to show everyone what happens when you put a kitten, wrapped in their soft blanket “purr-ito”, into the arms of a person with dementia. You see, when we bring appropriate sensory and social stimulation into the day’s experience of someone with dementia, we give…
In the 1980’s, the United States education system transitioned from the common practice of institutionalizing children with disabilities, to “mainstreaming” It seems that the goal was “inclusion”; helping children with disabilities be included and welcomed among fellow students who did not have disabilities, and helping students without disabilities become comfortable with kids with disabilities. I suppose that the idea was…
